LymeNet Europe

I have to add: If your body have made antibodies in the beginning of the disease, those antibodies are probably gone in a few years. Antibodies don't "last forever"! So, if you have had the disease for ten or more years (like me), you can't expect that a test made to (only) detect antibodies for ear...

There are good studies on cystform! Brorson, Miklossy (I hope I remember the last name right). I don't know everything about antibiodies, but a very important thing, is to use the right "ground" in the test. And, I think that antibiodies change during the disease, and then the tests made for early L...

Hi Spanky!

I have a microscope, and I can see both the spirochetes, granules and the cysts. I can see the cysts transform into spirochetes again!

Don't trust what IDSA claim!

As I se it, there is: 1: Cured Lyme without any restsymptoms 2: Cured Lyme with remaining symptoms (ABX will not work on this symtoms) 3: Active Chronic Lyme that ABX work on 4: Active Chronic Lyme that ABX don't work very well on (maybe due to co-infections or perhaps due to that some borrelia type...

When IDSA start to talk about biofilm colonies, CWD/L-form, immuno deficiencies (both primary and secondary due to chronic infections perhaps?) and when they understand cystform, then I (maybe) will listen to them! When IDSA mention all the cases that already have died from Lyme, then I (maybe) will...

My Dr (and I think most Swedish Dr are) is very responsible, and check with test so I don't be harmed by the treatment. Maybe there is Dr, that don't do this? But, if the Dr:s "do things right", what is wrong with givning people who suffer from an chronic infection, treatment that help them? I, myse...

Spanky, you wrote: "The IDSA Guidelines ARE only recommendations, despite what you may have read elsewhere." Ok, since IDSA:s Guidelines (IDSA call it Guidelines) are only recommendations, an american Dr can do as he like too, then? In Sweden, there is (of course) also a "rule" for Dr:s not to do an...

Cobwebby, you wrote:

Carina-
Are there pediatric Lyme Specialists in Sweden?

Nope, the nearest one is in Germany!

Swedish Dr are allowed to do what they like, but in the most cases they don't. Maybe because IDSA (and our own infection "specialists") claim that we don't exist.

I think that every Dr who help us who suffer from chronic active (hard-to-cure) Lyme, need all the support we can give! And, I don't understand why they don't change the IDSA-Guidelines to be only recommendations. I Sweden we only have recommendations, so a Dr in Sweden can actually do as he like. I...

Spanky, you wrote: "I wonder if the people responsible for leading this grand, glorious charge will ever feel any sense of responsibility or even shame, for taking these people's hard-earned money and just wasting it?" Please let us know if you know any Dr that know how to treat (with the only optio...