Do I have lyme? Could it be the cause for my MS? Tricky one...

Here you can introduce yourself and give an account of your medical history, visits to physicians, results of treatments, etc.
zjac020
Posts: 7
Joined: Thu 11 Jun 2015 13:19

Re: Do I have lyme? Could it be the cause for my MS? Tricky one...

Post by zjac020 » Sun 14 Jun 2015 13:52

Thanks all for the feedback. Im familiar with most of those readings but will review some anyway. The issue is that lyme, chlamydia pneumonae (Wheldon protocol), even candida have all been touted as the cause for MS. Its true they all share a infectious/bacterial or fungi component.

I am, technically speaking, still CIS. I forgot to mention that i had a positive Lumbar puncture but normal/negative evoked potentials.

I wish i could find.a.doctor to prescribe antibiotics. Having said that i dont have ongoing symptoms other than slight worse balance and a weakness in the right side of body (inc dropped foot) that appears only when body temperature rises. Still would be great to try antibiotics to see if anything happens. Im just not ready to self medicate long term with antibiotics unfortunately, im not brave enough.

However if ms is chronic lyme then I strongly urge all here to look into Dr Ciceros Coimbras high dose vitamin D protocol, or Anne Borochs Candida Cure protocol...because several i know have reversed their MS with these treatments....

User avatar
ChronicLyme19
Posts: 564
Joined: Mon 11 Aug 2014 17:42
Location: NY, USA

Re: Do I have lyme? Could it be the cause for my MS? Tricky one...

Post by ChronicLyme19 » Sun 14 Jun 2015 17:41

I suspect my one coworker's wife may actually has Lyme and not MS. I had asked him before are they sure it's MS and he said yes, because she had some positive test, but after reading the links from RitaA it seems to me that one does not exist. The only way you could really tell is if someone had a positive PCR or culture for Lyme, but it doesn't seem you could really ever conclude that it is MS and not Lyme as both can display identical symptoms. The reason I suspect she may actually have Lyme is the severe herxhimer reaction she had when they put her on antibiotics for something else. We're in a highly endemic region and she's had multiple tick bites. It really makes me wonder about her.

It's interesting you bring up the high vitamin D treatment. One of the folks in my town group who was just diagnosed with chronic Lyme has really deficient vitamin D levels. She tested positive through the C6 ELISA.
Half of what you are taught is incorrect, but which half? What if there's another half missing?

zjac020
Posts: 7
Joined: Thu 11 Jun 2015 13:19

Re: Do I have lyme? Could it be the cause for my MS? Tricky one...

Post by zjac020 » Sun 14 Jun 2015 23:04

How long ago.was she diagnosed? Donyou know what abx she took?

Ive contemplated self medicating myself with doxyclicine to see if i herx. Ive taking amoxycilin for about two weeks dor other reasons with no herx


As.for.vitamin D...id say all MSers are.deficient when they have their first relapse and that indicates theyve been deficient for a long time before that. Vitamin d is vital.for the immune system. Im very curious as to whether high dose vitamin d could.also help lyme...

User avatar
ChronicLyme19
Posts: 564
Joined: Mon 11 Aug 2014 17:42
Location: NY, USA

Re: Do I have lyme? Could it be the cause for my MS? Tricky one...

Post by ChronicLyme19 » Sun 14 Jun 2015 23:44

I wouldn't advise self medicating with anything. That's not smart and could be dangerous. If you really suspect you have Lyme you could discuss it with your doctor if taking a round of antibiotics would be appropriate. I was in that position before I got diagnosed. I had gone through several specialist being ruled out for everything else and so for me it was worth trying a round to see if it helped, and it did. Everyone's cases are different though, so you need to discuss it with your doctor.

I would not think herxing from Lyme would be different by antibiotic as long as the antibiotic is the right dose and is known to be effective against Lyme.
Half of what you are taught is incorrect, but which half? What if there's another half missing?

zjac020
Posts: 7
Joined: Thu 11 Jun 2015 13:19

Re: Do I have lyme? Could it be the cause for my MS? Tricky one...

Post by zjac020 » Mon 15 Jun 2015 1:17

In Europe we javehave state paid health care as well as private insurance but all stick to the protocols. Ive already dicussed this with my family doctor and neurologist. Family doctor says its an MS related issue and that i should speak to the neuro, neuro says abx are not part of the protocol and so will not get.involved in that. The same thing happened with LDN. How did i get it in the end? Self medicating. ...

zjac020
Posts: 7
Joined: Thu 11 Jun 2015 13:19

Re: Do I have lyme? Could it be the cause for my MS? Tricky one...

Post by zjac020 » Thu 12 Nov 2015 1:44

Its been a long time but I finally found a doctor in Spain familiar with Lyme (although I wouldnt say to LLMD level) and who prescribed antibiotics. Im taking Minocicline (2 x 100mg, one in AM one in PM) for a month, no reactions so far. Im also taking diflucan to prevent candida. I have noticed slightly worse digestions and different bowel movements, but this is usual when taking antibiotics and I also think is heavily influenced by the abx upsetting the intestinal flora (I take probiotics to try and help with that). Initialy we did start with 2x100mg in the AM, and 1x100mg in the PM but it was making me slightly dizzy/lightheaded, even after 10 days or so. The doctor thought it best to drop the dose.

One month in I belive I should now maybe retest the Infectolabs tests that initailly showed up as "grey2:

- Borrelia burgdorferi antibodies (immunoblot):
Borrelia-Blot-IgG-antibodies (+) borderline Bands: p21 +, p41 +
Borrelia-Blot-IgM-antibodies (+) borderline Bands: OspC Bg (+)

- Coxsackie-Virus-IgG Type B1 (IFT) + 1:800 Ref: Titer < 1:100
- Rickettsia rickettsii IgG-antibodies + 1:64 Ref: Titer < 1:64
- CD 57 cell count was at 125. Retested about 4 months later after taking supplements etc, and count was at 148.

What I have noticed is that in June I started getting a pain in my right leg, anterior side of the knee, only really evident when trying to bend the leg fully (imagine in a yoga position) and or when leaving the leg fully extended for a few minutes and then flexing the leg. The pain appears on flexing, but quickly subsides. An MRI of the area found a chronic lesion and traumatologist explained that it was probably brought on by exercise injury (maybe lunges with weights, I sometimes do those) and was causing the pain. The pain has been disappearing over hte last few months, but took quite a while.

In august a similar pain appeard on my left arm, very slight pain to be honest. Again opposite side of the elbow. This pain has now almost fully disappeared. What I have since last month (started before taking the antibiotics though) is muscle pain on the right arm, again opposite side to the elbow and most noticeable when i bend the forearm inward and tense the arm. in this position/movement both the bicep and forearm ache.

Any advice, information, opinions, whatever,would be great.

Thank you all,
zjac

wastintim7
Posts: 2
Joined: Sun 19 Oct 2014 19:06

Re: Do I have lyme? Could it be the cause for my MS? Tricky one...

Post by wastintim7 » Fri 8 Jan 2016 1:56

I can relate a personal experience that I know first hand. A friend recently passed away, he had been treated for 13 years for MS. An autopsy revealed he died of Lyme's. So at least in this case the drugs for MS were probably causing him harm. I wish you good luck in your search for a cure.

zjac020
Posts: 7
Joined: Thu 11 Jun 2015 13:19

Re: Do I have lyme? Could it be the cause for my MS? Tricky one...

Post by zjac020 » Fri 8 Jan 2016 23:18

Thanks wastintim7. I continue to be relapse free and more test continue to indicate slightly "weak" negatives for lyme. I'm on antibiotics for a few months to see what happens.

Really do wish they'd investigate and research lyme properly. Just out of curiosity...do you know what they found exactly in the autopsy? Had he never even been tested for the basic (and ridden with false negative) lyme tests? Was it something completely new to those close to him?

Kind regards,
Zjac020

Post Reply