Lymemd in PA

For everything that is related to Lyme and/or Lymeland, but doesn't fit in the other forums. Speak your mind, connect, ask help, etc.
cave76
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Joined: Sun 12 Aug 2007 2:27

Lymemd in PA

Post by cave76 » Fri 13 Feb 2009 15:46

Just wondering--- has anyone been following his status ----- 'being investigated'?

Fin24
Posts: 1699
Joined: Sat 8 Mar 2008 20:14

Re: Lymemd in PA

Post by Fin24 » Sat 14 Feb 2009 8:21

first he isnt in PA we established that

he is in Germantown Md...and I haven read updates about the Med Bd cases in his blog in awhile, sorry--theyre all more case descriptions and how good his judgement was in his opinion.

I beleive the confusion arises from his name Lymemd--meaning either Lyme DR OR Lyme md as in maryland where he is based

what I DO notice in the blogs are a LOT of case histories--one of the latest is a possible RA patient he treated with Lyme protocol that got better and he asks " so what if it wasnt really Lyme after all she got better and is off the more dangerous RA drugs she came to me with"

I dont disagree with that opinion BUT is he trying his own case in public??? are these the ones he is being charged with not following std of care??? are these the charts theyre examining??? and if yes is it ethical for him to do this??

if these are other patients, even outside the state's case Im still uncomfortable with his habit of discussing cases publcily with laymen albeit some educated or experienced with Lyme

it looks like he may be insecure about his judgements or maybe trying to get validation that he was right to procceed in those cases the way he did???

where are his legal advisors to perhaps suggest this isnt the best way to practice medicine by posting publicly for lay people to comment on??

btw a poster asked him what are the charges after all how can anyone support him if they dont know what he is accused of doing--Instead if simply replying, he answered that person that he wrote a blog about it and Ive spent the last 20 minutes looking for that blog and dont see anything where he says what the Bd is charging him with.

Maybe his legal advisors stepped in??

and yet I still see MANY ( dozens) saying theyll write and email and phone legislatures and media all on his behalf blindly without knowing ANY of the circumstances--and some seem to be promising financial support--IMHO thats whats wrong with Lyme these days and why we all get a bad name. Blind cult like worship has no place among critical thinking and valid research and medical decisions.


After contacting the Md Bd about the facts of the case, Until the actual hearing which may or may not be public they dont discuss the details. and then they may release only the findings which may possibly be made public; in general inquiries arent answered by many medical boards as to someone's charges. So unless this Dr shares we cant know, maybe ever.

cave76
Posts: 3182
Joined: Sun 12 Aug 2007 2:27

Re: Lymemd in PA

Post by cave76 » Sat 14 Feb 2009 16:12

*****he answered that person that he wrote a blog about it and Ive spent the last 20 minutes looking for that blog and dont see anything where he says what the Bd is charging him with.******

I looked for it too and couldn't find it. That's why I was asking, in case I'd just missed it.

Perhaps he deleted it? Post and blog entries have been known to 'disappear' when the OP regrets his or her rash statements. Perhaps this 'doc' did the same?

itsy
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Joined: Mon 29 Oct 2007 21:03

Re: Lymemd in PA

Post by itsy » Mon 16 Feb 2009 21:05

Hey.

I have been following that blog for a long time. And I did post on the thread over there concerning the upheaval. (you can guess which is me...its pretty obvious)

Anyway...I don't have a problem with him mentioning case histories so long as he isn't using names. For all we know he might be asking his folks if they care if he blogs about it.

Many times he des make sense, but the whining going on right now, and his clear lack of reponce to anything I said with any clear answer is just borderline ridiculous.

And now he hasn't posted in days...we shall see.

I'm not too far from him and I was even considering going out there. Now I am no so sure.

From what he has said, I don't know that there are any "charges", just an investigation, because a local ID didn't like that he treated some patients she wouldn't treat, and turned him in. However, if they cannot get him on treating by phone without safety labs or something like that it shouldn't be a problem. You would think, anyway.

Fin24
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Joined: Sat 8 Mar 2008 20:14

Re: Lymemd in PA

Post by Fin24 » Mon 16 Feb 2009 21:37

I am of the understanding that for an investigation there at least has to be accusations of something...and we still dont know what he has ben accused of doing or not doing--I meant " accusations" as well as " charges" which are more formal.

and to be clear its not the incessant listing of case histories I have a problem with---its the seemingly insecure nature I interpret when he seems to be asking for others' opinions and comments about it

the venue he chooses also bothers me--I doubt there are many (any?) experienced professionals reading and replying so it sorta dumbs down the merits of any discussions- IMHO that is

there are many sites where we non medicals discuss stuff and its obvious to all stopping by BUT when a MD involves himself in public discussions and then allows ( or even asks for) commentary by lay/untrained folks to ME it invalidates the quality of the content.And when a lurker sees the blog is by a professional, it may be assumed that the content is somehow more valid--and may not be!!!

I tend to value information that comes from sources with better cred and reliable info than the lay person reading a blog!!IF it were on a professional/medical site where the conversations were mainly of and between professionals Id have less issue with it!! and it would be far more valuable to readers as well.

If any of my specialists said " listen your case is very complex. Id like to discuss it this week at hospital rounds..."

or " Id like to discuss it next month at a professional conference and get feedback"..Id think Okay---now compare that .vs " Gee Id like to discuss your case with my backyard neighbor who drives a truck hauling fruits"

well I see a BIG difference and problem even IF that trucker knows a lot about my particular illness!!!

LymeH
Posts: 290
Joined: Mon 1 Mar 2010 16:41

Re: Lymemd in PA

Post by LymeH » Tue 2 Mar 2010 0:29

Someone claiming themselves to be a Lyme patient blogs that their doctor is Dr. Daniel Jaller of Germantown, MD. The patient gives their LLMD's blog link as:

Patient Blog:
http://fixx.livejournal.com/496762.html directs to his doctors blog at website: http://lymemd.blogspot.com/2008/07/human-side.html

The patient blog says:

My Doctor's Contact Information:
(should you or someone you know need treatment or guidance)
My doctor, Dr Daniel Jaller of Germantown Maryland, keeps a Public blog and follows recent developments in the effective treatment of Lyme Disease.

LymeH
Posts: 290
Joined: Mon 1 Mar 2010 16:41

Re: Lymemd in PA

Post by LymeH » Tue 2 Mar 2010 0:42

The good LymeMD posts in objection to evidence-based medicine. He and others are trying to push the States to pass laws to allow unlimited amounts of antibiotics for use in tick-borne diseases AND protect their LLMD's from investigation/complaints...... One of the arguments they are presenting to State legislatures is it is up to the doctors to decide on acceptable treatment based on the "art of medicine". They are trying to exclude themselves from having to support their treatment decisions with any sound concrete evidence. Passing these Lyme 'reform' laws are the first step in giving the LLMD's a free-for-all on treatment.

For those of us who want to be included amongst healers who use science, the state of the art as it exists at any particular point in time, as a basis, but only a starting point for the practice of their art: the art of healing; this answer turns out, in the final analysis, to not be so banal after all.

Evidence based medicine? Thumbs down.
Posted by Lyme report: Montgomery County, MD

LymeH
Posts: 290
Joined: Mon 1 Mar 2010 16:41

Re: Lymemd in Germantown, MD

Post by LymeH » Tue 2 Mar 2010 0:52

The good doctor also blogs about his patient, a " A 53 year old showed up at my door a little more than 2 years ago. He had been diagnosed with Lyme disease and was looking for help. He had already been ill for more than 3 years. He suffered with severe pain- on serious opiates.".

The doctor prescribed this man Namenda, claiming "His significant short term memory loss, bouts of mental confusion and aphasia were similar to presentations seen in the early to moderate stages of Alzheimer's disease. This is something quite familiar to me; I spent 15 years as the medical director of a large Nursing Home at one time. Based on the notion that Lyme dementia is related to glutamine sensitivity- as seen in Alzheimer's disease as well, I prescribed Namenda."
Last edited by LymeH on Tue 26 Jun 2012 17:52, edited 2 times in total.

Fin24
Posts: 1699
Joined: Sat 8 Mar 2008 20:14

Re: Lymemd in PA

Post by Fin24 » Tue 2 Mar 2010 2:16

Lyme Hystorian

I do not disagree with any of your assertions

are you at all familiar with the US historical Lyme saga?? earlier on, the "leaders' connected with FAIM et al and some of our esteemed LLMDs seem to me to have made a pact with the devil

there is IMO too much non evidence based marketing and marketeering and the basis for the whole notion of the LLMD being untouchable and not subject to accountability started way back with early Lyme groups including LDA-NJ just prior to going national (EVEN so far as to fight the charges of wrongdoing just because they are "our LLMDs")

on this site try searching for those posts by Cave on FAIM and DSHEA--she made some headway into the sordid connections and alliances formed early on. Add to that the desperation of the ill driven to "believe" and their naivete and willingness to be led by the likes of some without the basic education or training to know why their premises are so wrong and there is a recipe for disaster

this total allegiance and infantisizing of the patients, so that "leaders" grab a parental role, telling us what THEY think we need to hear; is a big part as well.

also IMO I think part of whats holding us back--is the insane notion of IDSA being an "enemy"--if ILADS were to get some darn accountability and stop listening to Tincup and LDA et al and refuse membership ( and rescind membership) of those who arent even medical professionals and then to those Drs not practicing medicine with some sort of standards and then open talks with IDSA, perhaps then we can get all parties to talk about whats so

in other words move the dialogue away from " them vs us" into " how can we study which pts are doing well and which arent and why and target treatments so that more are doing better"

and that IMO requires a lot of self searching and admissions, release of power and attitudes of omnipotence, and based upon the latest kerfluffle at Lymenet I dont have confidence in it happening anytime soon.

The IMO insane need to control information flow much like propaganda machines and then disseminate wordy yet untrue explanations when caught red handed, that cloud things even more, is well, upsetting and aggravating to me.

FYI another problem with this LymeMd blogger IMO is his willingness to post drug protocols including dosages. and allow posters replying to do the same. This promotes self treatment and also gives incomplete information since we dont know ( and frankly shouldnt be privy to) those pts medical history in a way that we can make informed decisions to follow that protocol for ourselves--and then pts run to their own LLMDs demanding that treatment and many will acquiesce!!

FWIW that may be the reason for LDA et al to want total control over bills and their wording!!! to give wide berth away from treatment choices--and the reason they use Tincup aka Lucy Barnes to maintain that control in MD ( referring to this week at LN)--the 2 reasons anyone would want to kill a perfectly sound bill using ridiculous excuses IMO are 1. liking to feel that nothing happens in MD without her permission and 2. blocking some sort of accountability of the LLMDs

right now they have an "agreement" brokered by Tincup and the Med Board--one person on that Bd I should say--and she insists thats what everyone has to want;its best for them per HER and LDA, despite evidence to contrary

she even admits to working hard to kill that bill anyway she could!! ( I cant beleive that was all due to the animosity between NatCapLyme and LDA) something more lurks

so Ive been thinking about the reasons ( other than the control thing) and Im starting to beleive that the Dr accountability and the bills wording about treatments and "evidence based" is partyl what got to them.while indeed protecting Drs who treat Lyme with some standards and evidence based choices, it may in fact demand accountability for unproven practices. something LDA et all cant bear to have

LymeH
Posts: 290
Joined: Mon 1 Mar 2010 16:41

Re: Lymemd in PA

Post by LymeH » Tue 2 Mar 2010 4:12

Well said. You explain it better than I did. I do understand that not all LLMD's are created equal and it would be a disservice to refer to them as all the same. As you mention, it would be equally as bad as their reference to the IDSA as all bad.
Last edited by LymeH on Tue 26 Jun 2012 17:54, edited 1 time in total.

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