And since these people are posting on Lymenet, I would have to assume they we are most certainly talking about "LLMD"s.
Here's an example of this from a recent posting:
http://flash.lymenet.org/ubb/ultimatebb ... 110#000014
$50,000? No s**t? Really?My credit card debt is over $50K because of this dumb illness. Oh, and I have student loans and a mortgage and all the other regular bills.
In another thread, I noticed where someone had said that they had been "fired" as a patient for wanting to do orals rather than an iv, and that the intial consult was $1000.
So...is it worth this? What does this do for you?
Reason I ask is because I have never seen an "LLMD"...have worked with my internist, and have, as a consequence, only paid my deductibles and co-pays...even for the most cost-intensive phase...when we were going through all the diagnostic work-ups. Insurance covered. I was never placed on an iv. Orals only.
And now...I see the doc once a year. My average monthly cost is about $5.00. $60 a year. My co-pay for thyroid meds. Has been for years. Most I ever paid was $1000 in one year. I have $0.00 Lyme-related longterm or short term debt.
And the big question to me is: 'am I any worse off' ?...is my health status any worse, or substantially worse, than those that have been encouraged to put themselves in the poor house? When I was first diagnosed, I was told that I absolutely HAD to haul my behind to an "LLMD"...or face death or longterm disability.
Well, now, I seem to be just fine. And I was really, really bad. About as bad as you can get, I would think. As I have said, heart, neuro, eyes, you name it...had trouble just walking and speaking. Even the palps and tachycardia which I thought I was going to be stuck with forever, seem to have dissipated. (123/71, pulse 73...as of yesterday). Ta-da.
From reading there...here...elsewhere...I tend to doubt it. That is, By comparison, it doesn't seem as though my "Lyme journey" is substantially different than those that went the full LLMD route...(except, of course, I still have my money). And it seems, sometimes, to take about ten years for full recovery.
So what if all this "LLMD" stuff really doesn't do a damn thing for you?
My suspicion, my theory...is that people who have invested $50,000 in anything...tend to become true believers. They are "invested". And they encourage others to do the same.
And "activists" who insist that people MUST have an "LLMD" or DIE...well, they have "bought into" it, too, haven't they? How could they possibly come to grips with the realization that they have advised countless patients to throw away their life's savings?
And the "LLMD"? Well, he/she would have to admit that they have been recommending what is basically worthless treatment. And beyond the moral, ethical considerations...there could be legal repurcussions, I would have to imagine. (Some of them may offer treatments that are worse than useless).
So, from a psychological standpoint...I guess it is interesting to me to realize, keep in mind, that the patient advocates and members of "LLMD", Inc., may have a distinct and powerful motive for denying, themselves.