Information for people from Europe

For everything that is related to Lyme and/or Lymeland, but doesn't fit in the other forums. Speak your mind, connect, ask help, etc.
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Information for people from Europe

Post by X-member » Wed 20 Jun 2012 16:29

"Laboratory services and diagnosis for Lyme disease and possible co-infections"

http://www.b-c-a.de/fileadmin/img/bca/P ... .07.11.pdf

They also give some information about Lyme stages (in Europe):

A quote (stage 3/chronic/late Lyme borreliosis):
Stage III
(after months up to years): Thinning of the skin at the back of the hand, (“Acrodermatitis chronica
atrophicans“), Borrelia lymphocytoma (ear, nose, scrotum), lethargy, fatigue, paraesthesia, cognitive
dysfunction, muscle inflammations, joint inflammations and swelling, tendon inflammations,
inflammation of the bursa, vasculitis, myocardinal diseases, depression.

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Re: Information for people from Europe

Post by X-member » Wed 20 Jun 2012 16:41

"Diagnosis and Treatment of Lyme borreliosis"

"Deutsche Borreliose-Gesellschaft e. V."

http://www.borreliose-gesellschaft.de/T ... elines.pdf

RitaA
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Re: Information for people from Europe

Post by RitaA » Wed 20 Jun 2012 17:41

Yvonne posted this link in another thread back in January 2010, but I think it might be worthwhile posting again here:

http://content.karger.com/produktedb/ka ... e37_02.pdf
Lipsker D, Jaulhac B (eds): Lyme Borreliosis.
Curr Probl Dermatol. Basel, Karger, 2009, vol 37, pp 51–110

Clinical Manifestations and Diagnosis of Lyme Borreliosis

Franc Strle a Gerold Stanek b

a Department of Infectious Diseases, University Medical Center Ljubljana, Ljubljana , Slovenia;
b Medical University of Vienna, Clinical Institute of Hygiene and Medical Microbiology, Vienna , Austria

[snip]

Another often neglected fact is that the clinical presentations of Lyme borreliosis
in America and Europe differ in some respects, making it inappropriate to uncritically
apply the findings from one side of the Atlantic to the other side [15] . Another
important aspect is that, because of the much higher publication frequency of USA
researchers and physicians in the field of Lyme borreliosis, it is quite possible that the
diagnosis of Lyme borreliosis in Europe is predominantly assessed through ‘American
eyes’. The opinions offered in the present report are based primarily on European
data and experience, and most probably fit better to the situation in Europe
.

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Re: Information for people from Europe

Post by X-member » Wed 20 Jun 2012 21:22

Thank you RitaA!

Some Swedish info:

http://www.lakemedelsverket.se/upload/h ... d_webb.pdf

A quote:
Skillnader avseende etiologiska agens och kliniska manifestationer
mellan borreliainfektioner i Europa och Nordamerika
innebär att information på amerikanska webbsidor om Lyme
borrelios inte direkt är tillämpbara för infektioner i Europa.
Last edited by X-member on Wed 20 Jun 2012 21:27, edited 1 time in total.

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Re: Information for people from Europe

Post by X-member » Wed 20 Jun 2012 21:22

Some more information in the topic below:

"The problem in Sweden (and maybe in other places in Europe)"

http://www.lymeneteurope.org/forum/view ... =11&t=3634

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Re: Information for people from Europe

Post by X-member » Sat 23 Jun 2012 21:53

UK:

http://www.breakspearmedical.com/files/ ... sease.html

A quote (more to read on the link):
How Breakspear Medical Group can help with the treatment of borreliosis

Once it has been determined that a patient has borreliosis, we can discuss with the individual the treatments, which may include antibiotics and immune support, as well as dietary and other interventions where appropriate.

The diagnosis and treatment of Lyme disease is complicated and specific programmes will be tailored to an individual's needs. (This means that the cost of testing and treatment will vary case to case.)
Last edited by X-member on Sat 23 Jun 2012 23:01, edited 1 time in total.

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Re: Information for people from Europe

Post by X-member » Sat 23 Jun 2012 22:03

Germany:

"Dr. med. Wolfgang Klemann"

http://www.dr-w-klemann.de/htmldocs/en_home.htm

BCA (Augsburg):

http://www.b-c-a.de/index.php?L=1

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Re: Information for people from Europe

Post by X-member » Sun 24 Jun 2012 16:11

What is chronic Lyme?

In Europe it is the same thing as IDSA call late Lyme disease.

Some european information about chronic (or late) Lyme borreliosis:

http://www.eucalb.com/

A quote:
Late Lyme borreliosis.
This uncommon stage presents several years after the initial infection and may involve the joints (Lyme arthritis), skin (acrodermatitis chronica atrophicans) or, rarely, chronic neurological syndromes.

Lyme arthritis
Lyme arthritis is rare in Europe but is more frequently seen in north America, possibly reflecting the variations in the distribution of affecting organisms in different parts of the world. It typically manifests as an intermittent or chronic mono- or oligoarthritis of the large joints; rarely with erosions of cartilage or bone. Sometimes it develops in patients who had previously experienced intermittent arthralgias or oligoarthritis in the earlier stages of the illness, progressing to continuous chronic arthritis. The knee is the most commonly affected joint. Direct infection of the joint has been implicated through spirochaete culture and DNA detection in joint fluid. However, the scarcity of spirochaetes in the synovial membrane and the difficulty of cultivation from the synovial fluid suggest that a reactive pathogenesis may be at work. A small percentage of patients show inflammation of tendons and enthesys (the point where tendons attach to the bone). The condition usually "burns out" after several years, but may leave some residual joint damage in severe cases. It is thought that some patients, particularly those with treatment-resistant arthritis, may also have a genetic predisposition to Lyme arthritis , as it has been seen more frequently in people with HLA-DR2 or DR4 phenotypes - suggesting an immunogenetic factor in pathogenesis.

Acrodermatitis chronica atrophicans (ACA)
Is an unusual progressive fibrosing skin lesion which is probably the most common manifestation of chronic Lyme borreliosis in Europe. It usually occurs in the lower limbs of elderly people, starting with a bluish discolouration of the skin, followed by gradual epidermal atrophy, the skin developing a thin shiny, papery appearance. The condition is due to the effect of continuing active infection. Live spirochaetes have been isolated from skin biopsy specimens of patients with ACA as long as ten years after initial infection. ACA may also occur in young people and a case involving all 4 limbs of an 11-year-old was reported recently. (Brzonova et al., 2002).

Chronic neurologic syndromes
Lyme encephalopathy is rare. It should not be diagnosed in the absence of laboratory evidence of B. burgdorferi infection. It can result in memory loss, depression, sensory polyneuropathy or spastic paraparesis, probably caused by direct infection of the nervous system.

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Re: Information for people from Europe

Post by X-member » Sun 24 Jun 2012 16:18

But many people "think" since they don't have ACA, it can not be B Afzelii!

That is because most information only have this single symptom (ACA) mentioned.

But a disseminated B Afzelii-infection can give a lot of symptoms, and you don't even have to have ACA.

http://cid.oxfordjournals.org/content/43/6/704.full.pdf

Some symptoms for B Afzelii (from the link above):
Fatigue 80% of the cases
Malaise 80% of the cases
Sleepiness 30% of the cases
Memory disturbances 40% of the cases
Concentration disturbances 50% of the cases
Paresthesia 60% of the cases
Dizziness 60% of the cases
Nausea 30% of the cases
Vomiting 30% of the cases
Pains 90% of the cases (more detailed info on the site)
Temperature over 38 C 10% of the cases
Meningeal signs 10% of the cases
Peripheral facial palsy 10% of the cases
Arthritis 10% of the cases

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Re: Information for people from Europe

Post by X-member » Tue 17 Jul 2012 23:50

RitaA have posted some interesting information for people from Europe, here:

http://www.lymeneteurope.org/forum/view ... f=5&t=4023

Thank you, RitaA. 8-)

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