Information for people from Europe

For everything that is related to Lyme and/or Lymeland, but doesn't fit in the other forums. Speak your mind, connect, ask help, etc.
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Re: Information for people from Europe

Post by X-member » Tue 24 Jul 2012 1:18

Interesting (and important) information from Dr Marie Kroun, Denmark in the topic/post below:

http://www.lymeneteurope.org/forum/view ... =20#p30213

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Re: Information for people from Europe

Post by X-member » Mon 13 Aug 2012 15:26

From the Swedish recommendations (Dr Dag Nyman):

http://www.lakemedelsverket.se/upload/h ... d_webb.pdf

A quote:
"Kronisk aktiv borrelios

En långvarig, under månader till år, aktiv borreliainfektion ses numera sällan. Detta beror på en hög grad av uppmärksamhet på fästingburna infektioner hos allmänheten och sjukvården, vilket leder till snabbt avlägsnande av fästingar och till tidig behandling. I Europa är 1–5 % av infektionerna sena Lyme borrelioser, vanligast ACA, följt av kronisk artrit och sällan kronisk enkefalomyelit."
Translation with google translate (and partly by me):
Chronic active Lyme disease

A long-term, months to years, active Lyme infection now rarely seen. This is due to a high degree of attention on tick-borne infections among the general public and care, leading to rapid removal of ticks and early treatment. In Europe, 1-5% of the infections are Late Lyme borreliosis, mostly ACA, followed by chronic arthritis and rarely chronic encephalomyelitis.
The correct translation of the definition chronic active Lyme disease is instead (at least if you are going to write in an European Lyme forum ;) ):

Chronic active Lyme borreliosis.

So, you people in Scandinavia, Russia and Europe, do not trust google translate! 8-)

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Re: Information for people from Europe

Post by X-member » Mon 17 Sep 2012 17:43

There are a lot of interesting information in the topics below:

"German experts publish objections to IDSA:s guidelines"

http://www.lymeneteurope.org/forum/view ... 211#p31526

"Guidelines for Diagnosis and Treatment German Borreliosi"

http://www.lymeneteurope.org/forum/view ... f=6&t=4204

A quote (from the topic/thread above):
"Chronic persistent Lyme Disease (LD) or chronic Borreliosis"

http://www.lymeneteurope.org/forum/view ... f=6&t=4210

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Re: Information for people from Europe

Post by X-member » Mon 17 Sep 2012 17:50

Here is some VERY IMPORTANT information:

"Neuroborreliosis is not the same thing as late Lyme disease"

http://www.lymeneteurope.org/forum/view ... =20#p31527

A quote (from the topic/post above):
Similarily, misdiagnoses can also occur if the CSF (Cerebrospinal fluid) analysis fails to show Borrelia antibodies or inflammation markers. The same applies if the patient has been treated with Cortisone in the past after a tick bite. The lab results are therefore misleading. A case of chronic persistent Borreliosis will not show any signs of inflammation or abnormalities in the CFS after a certain period of time and ,also, not if the spirochetes haven`t been close enough to the ventricular area or the centre of the brain where the cerebrospinal fluid flows. Nevertheless, CFS is, at the moment, still the standard procedure to rule out the possibility of active Lyme Disease.

Almost all chronic and actively persistent Borrelia infections cause neurological, cognitive and psychological impairment and symptoms, therefore it would be more correct to speak of chronic Borreliosis with neuro-psychological symptoms, rather than of Neuroborreliosis, to avoid confusion with the disease pattern of acute Neuroborreliosis.
acute = early

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Re: Information for people from Europe

Post by X-member » Wed 6 Feb 2013 11:35

‎"Chronic Lyme Disease and Co-infections: Differential Diagnosis"

2012

http://www.benthamscience.com/open/tone ... TONEUJ.pdf

A quote:
The diagnostic difficulties of Lyme disease and co-infections always concern chronic Lyme disease (late Lyme disease, stage III). The synergic-pathological mechanism requires that co-infections are also present in chronic persistent form. Anamnestic consideration of the acute form of co-infections may be helpful to recognize their persistence in the chronic stage.

adriandonnellan
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Re: Information for people from Europe

Post by adriandonnellan » Mon 18 Feb 2013 12:25

hello my name is adrian,just joined lymenet.i am from england but now live in holland,i had lymes for around 3 years,2 posotive blood tests.I have a good doctor who try,s to help,the hospital in den bosch has been very unhelpfull,so if anyone has info on how to get good help in holland it would be a big help.the only relieve i have is exersise and long walks,as all the pain killers only make me more sick.ps reading other peoples storys helps because you end up feeling you are making it all up!

Lorima
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Re: Information for people from Europe

Post by Lorima » Thu 21 Feb 2013 15:04

Hello, Adrian,

I'm in the US, but there are some Netherlanders here at LNE. Maybe one of them can help.
It seems to me that there are more LLMDs in Germany. You'd probably have to pay out of pocket, but that's better than being sick. Check out this group:
http://www.borreliose-gesellschaft.de/en/Home

Personally, I would avoid alternative therapies, unless you have a lot of spare money. It's too hard to know if any of them work. You may be able to figure out, through online support groups, which doctors keep a low profile, but are willing to retreat relapsing patients with antibiotics, as needed.

Good luck, I hope your health improves.
"I have to understand the world, you see."
Richard Feynman

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Re: Information for people from Europe

Post by X-member » Fri 29 Mar 2013 15:59

Diagnosis and Treatment of Lyme borreliosis, Deutsche Borreliose-Gesellschaft e. V.

http://www.borreliose-gesellschaft.de/T ... elines.pdf

A quote:
In the early stage, i. e. in the first 4 weeks after the start of infection, a failure rate of 10% is to be expected with antibiotic treatment (121/135)
In the chronic forms, it is significantly higher at up to 50%. (30/31/52/55/74/99/121)
Even earlier studies referred to the problem area of chronic Lyme borreliosis and the limits of its susceptibility to treatment (31/55/59/61/62/65/92/94/121/138)
In all these studies, the duration of treatment was generally limited to a maximum of four weeks. Considerable therapeutic failure rates occurred under these conditions, even with repeated courses of treatment. (78/82/90)
The duration of treatment is of decisive importance for the success of antibiotic treatment.

There are now a few studies available which provide evidence of the positive effect and the safety of long-term antibiotic therapy.(25/26/27/30/36/44/46/51/52/81/144)

The limited effect of antibiotic treatment is documented in numerous studies: Pathogens were cultured even after supposedly highly effective antibiotic therapy.(63/74/81/96/119/120/122/139/147)
One more quote:
The term “chronic Lyme borreliosis” is equivalent to Stage III.

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Re: Information for people from Europe

Post by X-member » Mon 10 Mar 2014 10:15

Jahrestagung der Deutschen Borreliose-Gesellschaft 2014
vom 4.-5. April in Erfurt


http://www.borreliose-gesellschaft.de/d ... 2014Erfurt

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Re: Information for people from Europe

Post by X-member » Fri 29 May 2015 21:41

Support Luneng

http://www.supportluneng.no/pt/

A quote:
Suporte do processo de Rolf Luneng contra o Conselho de Saúde da Noruega.

– Talvez o julgamento mais importante em 2015
In English:

http://www.supportluneng.no/en/

A quote:
Support Rolf Luneng’s Proceedings against The Norwegian Appeal Board for Health Personnel – Perhaps the most important lawsuit in 2015

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