Lyme disease foundations and associations in Europe

For everything that is related to Lyme and/or Lymeland, but doesn't fit in the other forums. Speak your mind, connect, ask help, etc.
Kornish
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Joined: Thu 22 May 2008 4:29

Re: Lyme disease foundations and associations in Europe

Post by Kornish » Fri 19 Sep 2008 19:29

Cave,
He went to the US because he hasn't being doing too well overall. He hoped that US doctors with more experience can help him better. Unfortunately even the 'better' American treatment has not improved things much so far.

He travelled not because there was no helpful LLMDs in Poland. Polish LLMDs know all the treatment protocols for Lyme and coinfections and are doing an excellent job.

Soon Polish Lyme Association and Polish DNA Lab will have websites in English.

Kornish
Posts: 4
Joined: Thu 22 May 2008 4:29

Re: Lyme disease foundations and associations in Europe

Post by Kornish » Fri 19 Sep 2008 19:38

stf wrote:
Fin24 wrote:and if you scroll upwards youd see this too
You see, Fin24, the problem is I have been in contact with those people for almost 1.5 months now, and I haven't seen any such list despite I asked them.

I have a fear that Kornish's revelations are too optimistic. Hopefully I am wrong.

STF

STF is an arrogant ass*ole (I also read his other posts).
If he had described his story on Polish Lyme forum he would get a contact to LLMD.
Lists of LLMDs are not given freely to anyone upon email request as the privacy of doctors must be protected.
It is a precaution because Polish LLMDs are not prosecuted at this time. Still it is a valid precaution since things could go wrong as it was in the US.

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Yvonne
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Re: Lyme disease foundations and associations in Europe

Post by Yvonne » Sun 11 Jan 2009 19:43

England, Wales, Scotland:

Bada UK
Borreliosis and Associated Diseases Awareness UK (BADA-UK) is registered as a charity in England and Wales, and in Scotland. It was formed by a group of people who were brought together by the effects of Borreliosis / Lyme disease and other associated infections. All of our staff are unpaid volunteers from different professional backgrounds (such as scientists, medics, teachers and other professionals), who have agreed to use their skills to try to help address the increasing problem of ticks and tick-borne disease in the United Kingdom

Our own experiences
The prognosis for a patient is usually good if tick-borne diseases are treated early and adequately. However, misdiagnosis, delayed diagnosis, incorrect treatment, or total lack of treatment, has resulted in most of our members being ill for many years. For some of us, this has led to permanent disability.

Our aims
We believe that public and professional awareness is key to combating the rise in cases of tick-borne disease. We understand, perhaps better than anyone, the devastating effects that these diseases can have. Therefore we strive to help prevent others from falling victim to them.

Our charitable aims are:

-The advancement of education in the subject of Borreliosis and other diseases which are principally, but not exclusively, tick-borne.
-The promotion of research into the areas of such diseases described above, their symptoms, cures and prevention, and the dissemination of the useful results of research to the public.
-The preservation and protection of good health by education, research and other means as become available to us.


Our activities
We work closely with other organisations who share our concerns regarding the impact of ticks on the environment as a whole, and on people who work and pursue leisure activities within it. We also have co-operated with research projects by sharing data collated from our national survey.

We exhibit at various venues across the whole of the UK, to teach members of the public the facts regarding ticks, how to take defensive measures against them, and how to safely remove any attached ticks to minimise the risks of transmission of infection

We organise an annual national awareness week in spring, when ticks become more active. 'Tick Prevention Week' is publicised in the national media, which helps raise public awareness at a crucial time when people start to get out and about in the warmer weather. It has its own dedicated website (http://www.tickpreventionweek.org) which remains accessible all year round.


As well as providing a comprehensive website, we are also on hand to answer any questions that people perhaps cannot find the answer to. We also provide support for people who have been newly diagnosed or have concerns about their health.

Our funding
BADA-UK is funded solely by donations and by fundraising events. We do not receive any official funding. The money we raise is used to produce literature, to provide educational exhibits and presentations, to organise our national awareness week and for various other projects.

All our literature is available free-of-charge. It is available from our website and from our PO Box. People without Internet access can also get an abridged form of our website information which comes in the form of a booklet. Although we do not charge for our literature, we always welcome donations towards its production. We also ask for a stamped self-addressed envelope to be included to help minimise our postage costs.
http://www.bada-uk.org/
Listen to all,
plucking a feather from every passing goose,
but follow no one absolutely

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Yvonne
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Re: Lyme disease foundations and associations in Europe

Post by Yvonne » Sun 25 Jan 2009 11:52

Listen to all,
plucking a feather from every passing goose,
but follow no one absolutely

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Yvonne
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Re: Lyme disease foundations and associations in Europe

Post by Yvonne » Sun 25 Jan 2009 11:55

Finland : Association

WELCOME TO THE HOMEPAGES OF THE FINNISH LYME - BORRELIOSIS ASSOCIATION

We are a non-profit association advancing information about Lyme Borreliosis (LB). LB is a vector borne disease caused by a bacteria. Our mission statement is to further the research, knowledge and understanding of Lyme Borreliosis within both the public arena and the medical community. The purpose of these pages is not to give medical advices. If you are interested in any treatment published or discussed here, please consult your doctor

http://www.geocities.com/gallisto1/suomenlyme
Listen to all,
plucking a feather from every passing goose,
but follow no one absolutely

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Yvonne
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Re: Lyme disease foundations and associations in Europe

Post by Yvonne » Sun 25 Apr 2010 10:08

Finland association :

Suomen Lyme Borrelioosi ry :

http://www.borrelioosi.net/
Listen to all,
plucking a feather from every passing goose,
but follow no one absolutely

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Yvonne
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Re: Lyme disease foundations and associations in Europe

Post by Yvonne » Fri 30 Apr 2010 10:43

Czech Republic

Informative website on Lyme Disease with forum :

http://www.borelioza.cz/
Listen to all,
plucking a feather from every passing goose,
but follow no one absolutely

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Yvonne
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Re: Lyme disease foundations and associations in Europe

Post by Yvonne » Fri 30 Apr 2010 10:43

Norway association :

http://www.lyme.no/
Listen to all,
plucking a feather from every passing goose,
but follow no one absolutely

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Yvonne
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Re: Lyme disease foundations and associations in Europe

Post by Yvonne » Tue 20 Jul 2010 16:33

Listen to all,
plucking a feather from every passing goose,
but follow no one absolutely

X-member
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Re: Lyme disease foundations and associations in Europe

Post by X-member » Tue 20 Jul 2010 17:45

Swedish (association) new site:

http://www.borrelia-tbe.se/

They also have a forum, but you have to be a member in the association (above) to take part in it!

Swedish (open) Lyme forum:

http://borrelia.forum24.se/

Norwegian Lyme forum (new adress):

http://sunshine35446.yuku.com/forums/95

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