Zhang Protocol

Topics with information and discussion about unconventional diagnostic and treatment methods, and unconventional views.
Post Reply
Susan
Posts: 3
Joined: Sun 8 Aug 2010 0:48

Zhang Protocol

Post by Susan » Sun 8 Aug 2010 5:03

I am new to LNE and was diagnosed with Lyme last spring. I was sent to an LLMD for treatment but could not handle the high dosages of abx and had to quit after only 2 weeks because of my GI system.

The LLMD recommended the Zhang protocol. I googled the web and did a search on this site, but I have not been able to find much information or any patients that took the Zhang protocol long term that I could get feedback from.

I was wondering if anyone here could give me any feedback on this protocol for those of us who cannot handle the abx prtocols? Thanks!

Cobwebby
Posts: 1716
Joined: Mon 29 Oct 2007 0:55

Re: Zhang Protocol

Post by Cobwebby » Mon 9 Aug 2010 1:26

Unfortunately it doesn't appear that much has been discussed about the Zhang Protocol here.
But you can click on the "Search" at the top of this page and enter Zhang Protocol to find what may have been discussed previously.
The greater part of our happiness or misery
depends on our dispositions,
and not on our circumstances.
Martha Washington

Susan
Posts: 3
Joined: Sun 8 Aug 2010 0:48

Re: Zhang Protocol

Post by Susan » Mon 9 Aug 2010 4:32

Thanks for replying, Cobwebby. I really appreciate it. I did try searching your site, the LNUSA site, and every other Lyme site I could find. I could not find anyone who had taken his protocol. I find bits and pieces of people who have used some of Zhang's products, but no one who has been through his full protocol. It seems like there ought to be somebody who knows something?

Our state only had one LLMD and he retired last month. It's crazy in my state right now with people scrambling trying to find a doctor with the out-of-state LLMD doctors filled to capacity and not accepting any new patients. Our former LLMD had recommended Zhang because his protocol has some science behind it. I read Zhang's book and it is quite compelling, but I have some concerns. It seems like there should be other people who are using his protocol out there somewhere?

I was glad to find this site and see some level heads about all the strange treatments proliferating the internet. It is really confusing to try to learn about Lyme and how to deal with it online, but there is no where else for me to turn. I was disappointed to have to stop the abx. From what I have read, it seems like the only people who get well are those who do the long-term, high dosage abx. Is this right? Any help you could offer will be greatly appreciated.

Cobwebby
Posts: 1716
Joined: Mon 29 Oct 2007 0:55

Re: Zhang Protocol

Post by Cobwebby » Mon 9 Aug 2010 5:37

Susan, I wish I could help you but my treatment protocol is behind me-and I was treated for two years with antibiotics-and unfortunately- I'll never know if less time would have been sufficient.

There is a book by Dr. Singleton called The Lyme Disease Solution which has a lot of good information in it that makes sense- like his anti-inflamatory diet. Although he does prescribe antibiotics-he is also a homeopathic doctor.

Best of luck in your quest for healing.
The greater part of our happiness or misery
depends on our dispositions,
and not on our circumstances.
Martha Washington

Claudia
Posts: 1448
Joined: Wed 14 Nov 2007 1:19
Location: Connecticut, USA

Re: Zhang Protocol

Post by Claudia » Mon 9 Aug 2010 15:28

Hi Susan,

Has your doctor discussed with you the appropriateness of using IM Bicillin LA shots in your situation instead of orals? The two weeks you were on antibiotics, were they oral?

A lot of people have bad GI issues from antibiotics and the shots can be easier on the gut because they by-pass the stomach directly. Eating a good quality Greek yogurt every day can help a great deal, too.

Just a thought that might be worth a try.

Susan
Posts: 3
Joined: Sun 8 Aug 2010 0:48

Re: Zhang Protocol

Post by Susan » Mon 9 Aug 2010 23:32

Thank you both Cobwebby and Claudia for your thoughts.

I do have the book by Singleton and have read it. I appreciated the help in it. As for shots, our only LLMD in the state retired, so unfortunately, it's not an option. Having Lyme can be such a difficult situation on so very many levels..

Cobwebby
Posts: 1716
Joined: Mon 29 Oct 2007 0:55

Re: Zhang Protocol

Post by Cobwebby » Tue 10 Aug 2010 0:12

Well, according to some here, you don't really need an LLMD to get better. Just ask Spanky.
The greater part of our happiness or misery
depends on our dispositions,
and not on our circumstances.
Martha Washington

User avatar
Spanky
Posts: 2762
Joined: Sun 20 Jul 2008 19:40

Re: Zhang Protocol

Post by Spanky » Tue 10 Aug 2010 17:17

"Cobwebby":
Well, according to some here, you don't really need an LLMD to get better. Just ask Spanky.
Hi, Susan:


(And since my name has been mentioned)...yes, I am certainly skeptical about the validity and necessity of the whole "LLMD" thing. (Not wanting, of course, to offend anyone's religious beliefs).

But I am also just skeptical in nature. After 10 years in Lymeland, I think I am probably now just downright cynical.

For instance, the word "protocol" is a sort of red flag for me. Are you familiar with the expression "putting lipstick on a pig"?

Well, my reaction when I hear the word "protocol" is that the word "protocol" is the lipstick and whatever word comes before it is the pig. Especially if, as is customary, there is a book being sold that explains the near-miraculous advantages of the "protocol".

But I am certainly not the only one who thinks the whole "LLMD" route is unecessary...this is an exceprt from a book from one of the original Lyme activist organization founders:
From "Everything You Need to Know About Lyme Disease", Karen V. Forschner, (1997) @ p.74:

"No single medical specialist has the ideal training to handle a case of Lyme disease, but I recommend that you seek medical care from your family physician, internist or pediatrician. These experts are trained to take care of the whole body, and they are generally the individuals who know you and your full medical history best. Sometimes,your physician may recommend a consultation with a medical expert more familiar with Lyme disease, such as another internist, rheumatologist, or an infectious disease specialist".

As I have said, here, elsewhere, I have never had the pleasure of being seen by a so-called "LLMD".

But from what I gather from years and years of reading online accounts, there is nothing particularly magical about them, unless you consider their ability to make your savings mysteriously disappear before your eyes.

User avatar
Diagnosee
Posts: 14
Joined: Sun 28 Nov 2010 5:42
Location: Virginia, USA
Contact:

Re: Zhang Protocol

Post by Diagnosee » Thu 3 Oct 2013 3:20

Spanky wrote:
From "Everything You Need to Know About Lyme Disease", Karen V. Forschner, (1997) @ p.74:

"No single medical specialist has the ideal training to handle a case of Lyme disease, but I recommend that you seek medical care from your family physician, internist or pediatrician. These experts are trained to take care of the whole body, and they are generally the individuals who know you and your full medical history best. Sometimes,your physician may recommend a consultation with a medical expert more familiar with Lyme disease, such as another internist, rheumatologist, or an infectious disease specialist".
Are you endorsing this philosophy? Go to your PCP and let the typical garden maze begin?

I know this post is three years old but in perusing the forums for specific information I found this thread and then this quote of yours. I can understand some heavy disbelief in the LLMD world with all the money spent and years wasted, but to fall back on what has kept patients from any possibility of real treatment has to be a joke or that of what one of my former cash hog LLMDs audaciously euphemized as "brain fog".

Sorry for the honesty. Take it or leave it.
If my posts seem errant or scatter shot, forgive me. I'm speaking through the glasses from "They Live".

Post Reply