90% of kids with autism have Lyme??

General or non-medical topics with information and discussion related to Lyme disease and other tick-borne diseases.
Claudia
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Re: 90% of kids with autism have Lyme??

Post by Claudia » Fri 1 Feb 2008 18:52

This VCS was used to diagnose Lyme in kids with autism??
It doesn't say that specifically regarding autistic patients. The VCS info was quoted from the website on Lyme disease and Dr. Warren Levin, the MD quoted in the Autism and Lyme press release.

rlstanley
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Re: 90% of kids with autism have Lyme??

Post by rlstanley » Fri 1 Feb 2008 19:31

Googling, what I find is the following quote (from a PHA publication) http://209.85.173.104/search?q=cache:2W ... cd=3&gl=us

Scroll down to "Link Between Lyme Disease & Autism". The 90% is highlighted in green:
Many leading doctors and researchers are now suggesing that up to 90% of children with Autism are infected with the borrelia bacteria, which is the causative agent of Lyme disease.
Okay, who are these 'doctors and researchers'? If there are many and are 'leading', then a few names should link to this concept.

BTW Borrelia burgdorferi beongs to the genus Borrelia. There are many Borrelia species and not all of them cause disease. Saying "...borrelia bacteria[sic], which is the caustive agent of Lyme disease." is incorrect.

Rita

PS: I am grateful that Fallon is doing a epidemiological study on this.

rlstanley
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Re: 90% of kids with autism have Lyme??

Post by rlstanley » Fri 1 Feb 2008 19:45

Found the answer to my question. Well, it is a partial answer:

http://209.85.173.104/search?q=cache:sL ... cd=3&gl=us
It is believed that up to 90% of ASD kids may have Lyme disease

(per verbal communication with 5 DAN doctors around the U.S.)
Many?
Leading?
Names?

Is this supposed to be research or marketing hype?

Rita

Claudia
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Joined: Wed 14 Nov 2007 1:19
Location: Connecticut, USA

Re: 90% of kids with autism have Lyme??

Post by Claudia » Fri 1 Feb 2008 20:25

Is this supposed to be research or marketing hype?
Did you look at the website link for the pharmacy/pharmacy store/Doctor(s)? There are many proprietary supplements and tests and experimental therapies to be offered as treatment along with antibiotics. Especially when they allegedly have a test that gives 90-100% positive test results in this group, and a group of parents who would do anything to help their child potentially recover from autism.

You bring up a good point on the distinction between Borrelia bacteria and Bb, the causitive agent in Lyme disease. It seems like nit-picking and may be an editorial mistake in the PHA, but I have a neighbor that went to an alternative Lyme disease treatment center to explore the possibility that her RA was Lyme disease. Here's how the healers at the center diagnosed her with Lyme disease: they scraped her gums and under a microscope showed her that she was infected with "the Borrelia spirochetes." The treatment plan to address her Lyme disease was light therapy.

Rita, I am sure you know that the spirochetes that they found had nothing to do with Bb and Lyme disease, were part of the commensal microflora and Treponema denticola we all have living in our oral cavities. So it is an important distinction when making a diagnosis.
Last edited by Claudia on Fri 1 Feb 2008 22:58, edited 1 time in total.

Claudia
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Location: Connecticut, USA

Re: 90% of kids with autism have Lyme??

Post by Claudia » Fri 1 Feb 2008 22:35

Warren Levin M.D. The Connecticut board alleged, among other things, that Dr. Levin used Dimercapto-propane sulfonate (DMPS) and PolyMVA (drugs without FDA marketing approvals). According the Investigative Report The consultant states that the documentation respondent provided regarding his involvement in research is unacceptable. Respondent's billing records suggest another motive for performing the tests. The material provided to support some of respondent's practices and tests, includes case series, testimonials and commentary. There is no evidence of randomized, blinded, or reproducible research. The research documentation respondent provided does not include the protocol used, informed consent, quality controls, signed statement of the investigator, the Institutional Review Board or the FDA's IND document. The consultant questions why were the patients involved in research required to pay for their tests and treatments. On 2005-06-05 Dr. Levin signed a consent agreement which restricted re-application for licensure in Connecticut but specifically denied any and all wrong-doing. Dr. Levin was the principal investigator for a study titled Effects of Growth Hormone (GH) or Growth Hormone Releasing Hormone (GRF) on Age-Related Insulin Resistance, Pulmonary Function and Quality of Life which was reviewed and approved by the Great Lakes College of Clinical Medicine Institutional Review Board. (7)

State of Connecticut Department of Health Services, Connecticut Board of Medical Examiners. In re: Warren Levin M.D. Consent Order. 2005-06-05. Available from http://www.bioethicswatch.org/pd/levin_ ... 001005.pdf

State of Connecticut Department of Health Services, Connecticut Board of Medical Examiners. In re: Warren Levin M.D. Investigative Report. 2003-12-16. Casewatch.org web site. Available from http://www.casewatch.org/board/med/levin/inv.shtml

http://www.circare.org/pd/glccm_docboardorders.htm

7. IRB approval: List of studies approved by the GLCCM IRB and enrolling subjects in March, 2000 when FDA suspended the IRB's authority.

cave76
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Re: 90% of kids with autism have Lyme??

Post by cave76 » Fri 1 Feb 2008 23:31

Thanks Claudia-----

Am I remember incorrectly? Or did that Dr. Levin have an article in either PHA or Townsend or ??? where he stated that (just going from memory here) Lyme could not be treated successfully without abx?

Or was that another Levin. Or am I imagining things?

minitails2
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Re: 90% of kids with autism have Lyme??

Post by minitails2 » Sat 2 Feb 2008 1:13

Well,
This all very disturbing isn't. Rita you said that there must be a name for this piling on of one unverafiable "fact" after another. I believe it's called bulls**t.

It is extremely hard to see that some of these docs are targeting children at this point. They've been doing that for long time with ADD and ADHD and I haven't seen it slow down.

I think that some practitioners, not just MD's, want to keep a stable base in their practice and will continue to identify people as "sick" and continue to use ineffective and idiotic "treatments." Desperation, imo leads people to make very unsound decisions. Also, imo, for some caregivers, again the whole spectrum not just MDs, making money will continue to be their overriding motive, whether they know it consciencely or not.

Martian
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Re: 90% of kids with autism have Lyme??

Post by Martian » Sat 2 Feb 2008 15:19

Quoting source: LIA Foundation: The Lyme-Autism Connection
Finally! It's here, the association between Tick Borne Diseases, Lyme Borreliosis and Autism Spectrum Disorder is published! Click the link below and read the full version and the press release to follow!

The association between tick-borne infections, Lyme Borreliosis and Autism Spectrum Disorder [PDF]

Evidence Mounts Implicating Lyme Disease in the Autism Epidemic

More proof that infections play a role in this childhood epidemic.


(PRWEB) November 7, 2007 -- A new article in Medical Hypotheses, "The association between tick-borne infections, Lyme Borreliosis and autism spectrum disorders" was released this week. Robert Bransfield, M.D., the main author collaborated with top doctors in both fields on this paper such as Jeff Wulfman, M.D., William T. Harvey, M.D. and Anju Usman, M.D.

The summary of the article states that "Chronic infectious diseases, including tick-borne infections such as Borrelia burgdorferi may have direct effects, promote other infections and create a weakened, sensitized and immunologically vulnerable state during fetal development and infancy leading to increased vulnerability for developingautism spectrum disorders."

Bransfield et al, examine clinical observations, case reports, laboratory testing of patients with Autism Spectrum Disorder for tick-borne diseases, brain imaging results, epidemiological findings, infections and autism, tick-borne/Borreliosis infections and psychiatric illness and many other factors in this collaboration of research findings.

Numbers indicate that 20-30% of children with Autism Spectrum Disorder may be infected with Lyme Borreliosis and pathogenic Mycoplasma may be a contributor in 58% of cases. With these staggering numbers, families and physicians need education onthe proper testing and treatment methods currently available. With these 20-30% numbers representing around 140,000 cases of autism in the United States alone, the human impact of this disease is staggering. Bransfield et al states that "If just 20% of the 560,000 recognized cases of ASD in the US can be prevented or more effectively treated, this could result in a savings of $358 billion in addition to the incalculable human impact of this disease."

The authors recognized the contributions of Charles Ray Jones, M.D. for decades of expertise and dedication in helping hundreds of children with Lyme Borreliosis and autism spectrum disorder.
Abstract of "The association between tick-borne infections, Lyme borreliosis and autism spectrum disorders":
Med Hypotheses. 2007 Nov 1 [Epub ahead of print]

The association between tick-borne infections, Lyme borreliosis and autism spectrum disorders.

Bransfield RC, Wulfman JS, Harvey WT, Usman AI.

Department of Psychiatry, Riverview Medical Center, 225 State Route 35, Red Bank, NJ, United States.

Chronic infectious diseases, including tick-borne infections such as Borrelia burgdorferi may have direct effects, promote other infections and create a weakened, sensitized and immunologically vulnerable state during fetal development and infancy leading to increased vulnerability for developing autism spectrum disorders. A dysfunctional synergism with other predisposing and contributing factors may contribute to autism spectrum disorders by provoking innate and adaptive immune reactions to cause and perpetuate effects in susceptible individuals that result in inflammation, molecular mimicry, kynurenine pathway changes, increased quinolinic acid and decreased serotonin, oxidative stress, mitochondrial dysfunction and excitotoxicity that impair the development of the amygdala and other neural structures and neural networks resulting in a partial Klüver-Bucy Syndrome and other deficits resulting in autism spectrum disorders and/or exacerbating autism spectrum disorders from other causes throughout life. Support for this hypothesis includes multiple cases of mothers with Lyme disease and children with autism spectrum disorders; fetal neurological abnormalities associated with tick-borne diseases; similarities between tick-borne diseases and autism spectrum disorder regarding symptoms, pathophysiology, immune reactivity, temporal lobe pathology, and brain imaging data; positive reactivity in several studies with autistic spectrum disorder patients for Borrelia burgdorferi (22%, 26% and 20-30%) and 58% for mycoplasma; similar geographic distribution and improvement in autistic symptoms from antibiotic treatment. It is imperative to research these and all possible causes of autism spectrum disorders in order to prevent every preventable case and treat every treatable case until this disease has been eliminated from humanity.

PMID: 17980971 [PubMed - as supplied by publisher]

Claudia
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Re: 90% of kids with autism have Lyme??

Post by Claudia » Sat 2 Feb 2008 16:11

The Public Health Alert and Lyme Induced Autism Foundation (LIAF) better get their act together.

Nothing like increasing statistics by 300-400%. Wow.

I know now where the distainful and dismissive term "Lyme Hysteria" comes from in the mainstream medical community: this massaged press release and article in the PHA just validated their point.

rlstanley
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Re: 90% of kids with autism have Lyme??

Post by rlstanley » Sat 2 Feb 2008 17:06

Of course, to retain any credibility, the 90% figure had to be dismissed. Remember that came out earlier, and it looked like marketing hype to get attention.

The type of attention that attracts from the rational medical community only feeds into the 'Lyme causes everything--or almost everything" hyperbole.

as for:
Numbers indicate that 20-30% of children with Autism Spectrum Disorder may be infected with Lyme
Ok, who besides Bransfield et al can validate that figure? Is there a paper somewhere that shows the breakdown of this (show me the data) or is this just some summary statement?

I'll wait for the stats from Fallon who is the one I trust in all this mess.

Anyway, now that we know that about one quarter of autistic kids have Lyme(using the Bransfield et al. figure), just what kind of treatments do we see out there?

OKay, here is one that uses everything in the book, including salt/Vitamin C http://209.85.173.104/search?q=cache:sL ... cd=3&gl=us

Rita
Last edited by rlstanley on Sat 2 Feb 2008 19:09, edited 1 time in total.

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