90% of kids with autism have Lyme??

General or non-medical topics with information and discussion related to Lyme disease and other tick-borne diseases.
rlstanley
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Re: 90% of kids with autism have Lyme??

Post by rlstanley » Sat 2 Feb 2008 19:01

ID50 posted something interesting called:

Bad Hypothesis, Bad Press Release http://id50.blogspot.com/2007/11/bad-hy ... lease.html

I know people don't like him, but you might find some of his points interesting.

He does call for references.

You cannot fault him on that.

I wonder what the medical community at large thinks of any of this.

Rita

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LymeEnigma
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Location: The Nevada Desert, USA
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Re: 90% of kids with autism have Lyme??

Post by LymeEnigma » Sat 2 Feb 2008 20:21

I don't think I'd personally call Dr. Bransfield a clown ... but the ID50 posting does have some good points.

Claudia
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Re: 90% of kids with autism have Lyme??

Post by Claudia » Wed 6 Feb 2008 17:09

cave76 wrote: Am I remember incorrectly? Or did that Dr. Levin have an article in either PHA or Townsend or ???
PHA interview with Warren M. Levin M.D., Part 1
http://64.233.169.104/search?q=cache:Kh ... s&ie=UTF-8

PHA interview with Warren M. Levin M.D., Part 2
http://64.233.169.104/search?q=cache:Uh ... s&ie=UTF-8

Ten matching documents for Warren M. Levin in the Townsend Letter:
http://townsendletter.master.com/texis/ ... +this+site

From the Townsend Letter April, 2007, "An Overview of the LIA (Lyme Induced Autism) Think Tank:"
Discussion on Lyme Treatment Options:

Several aspects of treatment were discussed, including antibiotic therapy, herbal medicine, HBOT, and the "Salt/C Protocol." All these treatments have shown some benefit in chronic Borreliosis. Experiences vary as to the effectiveness of these treatments; however, it was generally felt that the most dramatic improvements are seen with the combination of herbal treatments with antibiotics. Practitioners are seeing improvements in many patients with the Salt/Vitamin C protocol. It is theorized that this treatment is most successful with parasitic infections, which lowers the overall infectious burden in the patient and therefore increases the success of subsequent therapies. It is not known if the Salt/Vitamin C protocol is actually effective against Borrelia bacteria or its coinfections.
http://www.townsendletter.com/April2007 ... nk0407.htm

rlstanley
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Re: 90% of kids with autism have Lyme??

Post by rlstanley » Wed 6 Feb 2008 23:31

From the Townsend Letter April, 2007, "An Overview of the LIA (Lyme Induced Autism) Think Tank:"
Discussion on Lyme Treatment Options:

snip
Practitioners are seeing improvements in many patients with the Salt/Vitamin C protocol. It is theorized that this treatment is most successful with parasitic infections, which lowers the overall infectious burden in the patient and therefore increases the success of subsequent therapies. It is not known if the Salt/Vitamin C protocol is actually effective against Borrelia bacteria or its coinfections.
Salt ingestion to the point of poisoning is seen in some cases of Munchausen's Syndrome by Proxy (scroll down)
http://www.emedicine.com/emerg/topic830.htm

The salt/Vitamin C Lyme protocol is medical quackery at it's dismal worst; the illogic of it all is mind numbing: http://lymeblog.com/modules.php?name=Ne ... e&sid=1242 , http://www.lymeneteurope.org/forum/view ... ?f=12&t=56

Rita

Martian
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Re: 90% of kids with autism have Lyme??

Post by Martian » Fri 8 Feb 2008 0:22

The "Lyme Induced Autism" (LIA) Foundation also mentions the Salt & Vitamin C protocol several times on their website:

Quoting source: http://www.lymeinducedautism.com/helpfullinks.html
This link provides information on the Salt / Vitamin C protocol for treating lyme disease and it's co-infections. This is an "eye-opening" website and not for the weak stomach!

http://www.lymephotos.com
Quoting source: http://www.lymeinducedautism.com/lymeau ... rview.html
Treatment discussion

Several aspects of treatment were discussed, including antibiotic therapy, Chinese herbal medicine, herbal protocols, HBOT and the salt/c protocol. All of these treatments have shown some benefit in treating chronic Borreliosis.

In regards to the effectiveness of these treatments, experiences vary. It was mentioned that herbal protocols, Chinese or standard herbal, have brought about improvements, however the most dramatic improvements are shown when herbal treatments are combined with antibiotic treatments. In discussing the salt/vitamin C protocol, many people are showing improvements with this. However, it is thought that the salt/c protocol is most successful in killing off parasites, which in-turn brings down the overall infection load of the patient, causing improvements. It is not known if the salt/c protocol is actually working on the Borrelia bacteria or it’s co-infections.
On the following pages are stories about how kids were "treated" with the salt & Vitamin C protocol:

Quoting source: http://www.lymeinducedautism.com/ourstories.html
Standard treatments don't work. I didn't mention that antibiotics caused huge problems for Tim. That's whyI am going to Dr. Derksen. The amoxicillin was miraculous for about 2 weeks (Tim was social, relaxed, outgoing, cooperative) then the GI problems started and his health deteriorated, so I had to stop. He is now on artemisinin for babesia and in about a week I am going to start the salt/c for him. I had a feeling that antibiotics were a bad idea, knowing what I know about autism and yeast.
Quoting source: http://www.lymeinducedautism.com/oursto ... ories.html
For the first two months on antibiotics and salt/C, there was massive die-off with extreme stomach pain, frequent fevers, increased night sweats, incredible resistance to change, oppositional behavior, rashes in the arm pit and groin, bright red ears, increased fatigue and sleepiness. He lost his desire to do anything and just wanted to lie down and rest. But, thanks to the antibiotics and salt/C protocol and his diet he started becoming more and more age-appropriate in speech and he started telling me that his neck, knees, and ankles hurt a lot.
Natural Treatment Options: http://www.lymeinducedautism.com/natura ... tions.html


I don't know what to say.. I am gobsmacked..

:bonk:

cave76
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Re: 90% of kids with autism have Lyme??

Post by cave76 » Fri 8 Feb 2008 0:54

****however the most dramatic improvements are shown when herbal treatments are combined with antibiotic treatments.*****

Well, duh! (Using great restraint and not using the :bonk: emoticon. :))

I'll have to re-read all this thread-----I sorta glossed over it since I've never had anyone close to me affected by autism.

Don't people who promote Salt and C feel just a tiny bit of guilt about offering that as a help for a serious and awful condition? Do they actually BELIEVE it? Shame.

rlstanley
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Re: 90% of kids with autism have Lyme??

Post by rlstanley » Fri 8 Feb 2008 2:09

Don't people who promote Salt and C feel just a tiny bit of guilt about offering that as a help for a serious and awful condition? Do they actually BELIEVE it? Shame.cave76
Who are the enablers and promoters of the salt/Vitamin C Lyme cure?

I just Googled "salt vitamin c lyme protocol cure" and came up with gobs: http://www.google.com/search?sourceid=n ... e+protocol

Rita

cave76
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Re: 90% of kids with autism have Lyme??

Post by cave76 » Fri 8 Feb 2008 3:37

Who promotes Salt and C? Your google hit list showed who, yes indeedy.

Lymenet usa is one of the best places for 'promoting' Salt and C. In fact if a person (moi! :)) posts anything showing some science or some woo-woo facts behind it---- you get boo'ed and hissed at. :D

I bet PHA has had or will have articles on it. Plus Townsend Letter.

rlstanley
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Joined: Mon 3 Dec 2007 2:53

Re: 90% of kids with autism have Lyme??

Post by rlstanley » Fri 8 Feb 2008 16:16

The salt/Vitamin C Lyme protocol/cure has a new twist. If you like apples, you might like this one.

http://lymediseaseresource.com/New_Salt_Protocol.html

Excerpt:
New Salt/Vitamin C Protocol

The original Salt/Vitamin C protocol was developed by a group of very smart long-time Lyme sufferers. The authors and many others testify to 98% functionality as a result of this simple and economical cure although most people don't stay on it long enough to be cured. Photos, reasearch, testimonies and specific instructions can be found at http://www.lymephotos.com/ and http://www.fettnet.com/lymestrategies/welcome.htm. The original protocol uses megadoses of Vitamin C and pure sodium chloride tablets to effectively fight Lyme disease.

I use a variation of this protocol for two reasons:

megadoses of Vitamin C tore up the lining of my stomach and caused diarrhea.
pure sodium chloride is toxic and caused major bloating which aggravated my joint pain.

4 capsules of Apple polyphenols/day, and 12 capsules of Himalayan Mineral Salt (I worked up slowly to 12 capsules daily (each capsule = 1 gram of sodium) which would be the correct salt dose under the original protocol based on my weight. Total RETAIL cost per month: $152.80
Rita

cave76
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Re: 90% of kids with autism have Lyme??

Post by cave76 » Fri 8 Feb 2008 16:32

LOL

***megadoses of Vitamin C tore up the lining of my stomach and caused diarrhea.
pure sodium chloride is toxic and caused major bloating which aggravated my joint pain.****

Strange how these Alternavistas will 'welcome' any nasty side effects of herbs or supplements or strange protocols------ but will point to similar side effects as reason to bray loudly and endlessly about the 'dangers' and side effects of abx.

I read on one Liver Flush site (do NOT ask me why I was there!!! ROTFL) that a member did 16 liver flushes in a row---- and was so jubilant about how sick and awful s/he was--- because 'it was doing something'!

The mind totally boggles!!!!

:bonk: :bonk:

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